
Anne Dauphine Julliand gave birth to a child with a rare incurable disease called “metachromatic leucodistrophy”. The child had little time to live and, during almost two years and with help from her sourroundings, Anne decided to be by her daughter every instant. Since then she concentrated herself day after day to look after Thaïs. It became a daily struggle that consisted in filling up each day with life when it is difficult to add days to that life. She talks about her story in her book “I will fill your days with life.”